5-year-old Girl Decided that she wanted to go to Heaven, and Her Parents Agreed

Julianna Snow is a 5-year-old who suffers from Charcot-Marie-Tooth disease, a neurodegenerative illness. This is the most common of all inherited neurological disorders (about 1 in 2,500 people have it). The disease usually is noticed in adolescence or early adulthood. 

For Julianna, the disease affects not only movement but swallowing and breathing. She is subjected to NT suctioning every few hours to remove the mucus that accumulates. Her decline was rapid and severe. Michelle and Steve Snow have written extensive blogs about their experiences and conversations.



The doctors explained to the parents of Julianna that they should consider what they wanted to do the next time an infection made it difficult for their daughter to breathe.

Did they want to bring her back to the hospital? The doctors said there was a reasonable chance Julianna would die there after being subjected to painful procedures. Even if she lived, they said, it would probably be for a short time, and she'd probably be sedated, unable to think and talk. There was no right answer the doctor said.



Early last year, Moon asked Julianna what she wanted to do and wrote about the conversation on her blog.

Michelle: Julianna, if you get sick again, do you want to go to the hospital again or stay home?

Julianna: Not the hospital.

Michelle: Even if that means that you will go to heaven if you stay home?

Julianna: Yes.

Michelle: And you know that mommy and daddy won't come with you right away? You'll go by yourself first.

Julianna: Don't worry. God will take care of me.

Michelle: And if you go to the hospital, it may help you get better and let you come home again and spend more time with us. I need to make sure that you understand that. Hospitals may let you have more time with mommy and daddy.

Julianna: I understand.

Michelle: (crying) -- I'm sorry, Julianna. I know you don't like it when I cry. It's just that I will miss you so much.

Julianna: That's OK. God will take care of me. He's in my heart.



Unbelievable that any parent would think a four-year-old is able to understand or make a decision of her life. 

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